We are on our way home after meeting with the oncologist and surgeon here. The main new symptom I have been having is weakness in the right side of my face affecting my vision. Things are blurry, particularly later in the day. From the scans, they can see tumor along the nerve were it goes through a small hole at the skull base. This area is not a candidate for surgery as the nerves are small and fragile. The best hope is that the chemo works to stop the tumor from growing and the nerve could regenerate somewhat or entirely on its own. There is an area of tumor around the brainstem but the surgeon said even that is risky and there appears to be no symptoms from that.
I've also started on a steroid late last week. The headaches and pain are gone now so I'm thankful for that. The steroid will reduce any swelling from the tumors.
My voice has been weak and sounds hoarse lately. I had a sore throat last week but the surgeon thinks its more a function of tumor growth.
Next MRI will be early December. We should know then if the pazoponib is working or not. I've been on that about three weeks now.
It's been harder lately to keep my attitude as good. I've been more discouraged as I feel my body decline. Being harder to talk, I'm more likely to be quiet which isn't me so much. The last couple days my sight is probably weighing me down too. I don't want to discourage you, just be as open as I can so people know what to pray for. Just pray my sight gets better and I can keep a good attitude.
Derek & Leann