May update

Sorry that it has gone so long since I wrote.  The month of May really flew by.  I know many of you have been wondering how things are going for us.  In general it has been a pretty calm month with not much happening medically.  I have been going to work about ½ time, and working on little projects around home the rest of the time.  The kids finished their school for the year about the first of May. We went to Mayo’s May 1^st and then the next week we went to Florida for a week on vacation.  We had good weather there and a relaxing time.  Since returning, we are in full-blown "nesting" phase as we prepare for the late July arrival of our baby girl.

My Mayo oncologist had recommended that I begin chemo (Avastin) when we were there the first of May.  She said the side effects of it are pretty benign and it’s really not that bad of a chemo drug.  I did a little research online to see what comments patients who have used it had.  The general consensus seemed to be that it gave them some really good months.  But then it seemed there’s a belief that if you stop using it, the tumor grows really fast after that.  I talked yesterday with the IU oncologist, and she said that Avastin can affect MRI scans so tumors look smaller than they really are, and suspects that is the cause of the supposed “fast growth” after stopping chemo.  As for tumor testing from Boston, that turned out to be fruitless.  For some reason they didn’t have enough tumor sample to get the test completed.  They won’t know anything for several more months, so we won’t be waiting on them to make our decision. We decided it would be worth talking to an oncologist in Peoria to learn more and try to decide what we should do.  We have an appointment set up for June 14 with Dr Gomez.  As far as how I feel, in general I have not felt too bad the last month, but it seems like I’m having more pain in my back lately.  I don’t know for sure whether it’s because I’m more active, or if it’s because the tumor is growing.  Pray that I won’t have too much fear or worry, and that when we meet with Dr Gomez we can have a peace about what our plan should be with chemo.

Thanks to so many of you who have continued to pray for us daily.  We definitely don’t feel worthy of it, but know it makes a difference and appreciate it.

Derek & Leann, Lexi, Wesley, & Whitley