We came up to mayos the last couple days since they wanted to followup with my pneumonia and I have had more back pain. I had a complete set of scans yesterday and this morning. We met with the doctors this afternoon. The scans show the upper back tumor has grown a little. This is consistent with the pain i have had. Their basic conclusion is that I can increase the pain med if needed. As for the pazoponib I am on, they were ready to give up on that. We convinced them that I stay on that for the time being since my symptoms only increased during the time I was off it. This was the hospitalization and a few days afterwards. They want me to do an octreoscan to see if i am a candidate for a certain type of drug. this test looks for somatostatin on the surface of the tumor. i wasnt able to get that test this same trip but will do it next time i am up. Dr Buckner is going to look into a couple other drugs in regards to the genetic testing I did last year.
I am not surprised by what the scans showed, but it is discouraging nonetheless. Thanks for your prayers over the past weeks. As for future prayers, just pray that the pazoponib can work and my pain is controlled. Otherwise, I have been feeling good, my brain has been working,eating is going better for the most part. I have lots of reasons to be thankful.
Derek and Leann